Wilson disease

Healthcare/Doctors

How do I find a center of excellence in Wilson disease?

Centers specializing in Wilson disease include:

In addition the Wilson Disease Association has recommendations listed on their website: https://www.wilsonsdisease.org/for-patients-families/centers-of-excellence

References
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What specialist doctors should I see with Wilson disease?

What specialist doctors should I see with Wilson disease?

Specialists for Wilson disease may include liver doctors, neurologists, speech pathologists, a liver transplant team, dietitians, genetic counselors, psychiatrists, laboratory technicians, and patient coordinators.

There is a Wilson Disease Center of Excellence at The Hepatology Program at Michigan Medicine at https://medicine.umich.edu/dept/intmed/divisions/gastroenterology-hepatology/programs/hepatology-program/clinics/wilson.html

In addition, please see the guide in seeking a specialist provided by the Genetic and Rare Disease Information Center at https://rarediseases.info.nih.gov/resources/pages/25/how-to-find-a-disease-specialist

To find a genetic counselor, the National Society of Genetic Counselors provides information at https://www.nsgc.org/page/find-a-genetic-counselor

References

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