Usher syndrome

Organizations

Are there good support groups for Usher syndrome?

Usher syndrome has an organization called the Usher Syndrome Coalitition www.usher-syndrome.org. There is also an Usher III Initiative that may be helpful for individuals with Usher Type III.

SOURCE: Emory University - Department of Human Genetics in collaboration with ThinkGenetic • https://www.thinkgenetic.com/diseases/usher-syndrome/organizations/42833 • DATE UPDATED: 2016-06-29

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