Where do I find other families with a child with Trisomy 13?
Other people who have a child with trisomy 13 can be found through online support groups. They include:
Chromosome Disorder Outreach (http://www.chromodisorder.org)
SOFT (Support Organization for Trisomy) (http://trisomy.org)
The Arc (http://www.thearc.org)
Hope for Trisomy 13 & 18 (http://www.hopefortrisomy13and18.org)
Your local genetic counselor may also be able to connect you with other families who have had a child with trisomy 13. Through the National Society of Genetic Counselors (NSGC) website, you can find a genetic counselor in your area (http://nsgc.org/p/cm/ld/fid=164).