What is the controversy on performing surgery on children with Trisomy 13?
Historically, it has been a challenge for parents of children with trisomy 13 to acquire some necessary interventions needed to extend life. This could be surgically correcting a heart defect or even resuscitating (reviving to prevent death) a child with trisomy 13. There has been more push back to these conventions in recent years.
The main arguments for minimal intervention include:
- Most babies with trisomy 13 do not live past infancy. Around 90% - 95% of children do not make it past the first year.
- Questions about the quality of life for the infant
The main arguments against minimal intervention include:
- Parents love their child deeply regardless of any diagnosis and should be allowed to provide them with standard medical care
- A number of children do survive past the first year of life (5% - 10%)
Cereda, A and Carey, J.C. The trisomy 18 syndrome. Orphanet J Rare Dise. 2012; 7:81
Adv Clin Exp Med. 2015 Sep-Oct;24(5):911-21. doi: 10.17219/acem/26324.Medical and Ethical Considerations Related to Viable Fetuses with Trisomy 13 in the 36th Week of Pregnancy--a Review of the Literature.Pawelec M1, D?ugalik M2, Pietras J2, Be?za ?1, Latkowski ?1