Sotos syndrome

Organizations

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Where do I find other people with Sotos syndrome?

How do I start a support group for Sotos Syndrome?

Where do I find other people with Sotos syndrome?

Support organizations and Facebook pages can help connect you with other people with Sotos syndrome. These organizations can also tell you about conferences and meetings for Sotos syndrome where you can meet other individuals and families with Sotos syndrome.

- http://sotossyndrome.org/

- http://www.childgrowthfoundation.org/Default.aspx?page=Conditionssotos

- http://sotossyndrome.co.uk/

- https://www.facebook.com/Sotos-Syndrome-Support-Association-248058888546350/?fref=nf

- http://www.specialneedsparents.ie/

- http://www.thearc.org/

How do I start a support group for Sotos Syndrome?

To start a local support group it is a good idea to contact the national Sotos syndrome organization to learn more about how to set up a local group. Facebook is also a helpful tool for finding other people in your area that would like to help with this process.

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