Sandhoff disease

Living with

How long do people with Sandhoff disease live?

Most children with Sandhoff disease do not live past the age of three to four. To find out more about living with Sandhoff disease, parents can talk with a medical geneticist or their pediatrician. To find a medical geneticist, patients can search the American College of Medical Geneticists "Find a Member" site.

Genetics Home Reference "Sandhoff Disease"

Bley et al Pediatrics. 2011 Nov; 128(5): e1233-e1241. PMID 22025593

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