Is there clinical research going on for retinitis pigmentosa?
There are many researchers interested in learning more about retinitis pigmentosa, including research on treatments and even possible cures. Research to Prevent Blindness has a great deal of information on research in regards to eye diseases, including a page dedicated to information about research on retinitis pigmentosa. Additionally, as of October 2016, ClinicaTrials.gov lists several ongoing research projects in regards to retinitis pigmentosa.
Some of the particular areas of focus in regards to research on retinitis pigmentosa and related degenerative eye diseases include:
- Utilizing stem cells obtained from the immature retina to prevent degeneration of the cells in the retina (rods and cones).
- Discovering as-yet unknown genetic causes for retinitis pigmentosa.
- Development of drugs to block the signal that leads to cell death in the retinas of people with retinitis pigmentosa.
- Gene therapy for a syndromic form of retinitis pigmentosa known as Usher syndrome.
- Creation of retinal implants to improve vision in individuals with retinitis pigmentosa.
More Clinical Research/Studies Content
How do I find clinical research on retinitis pigmentosa?
There are several resources available to help identify new and ongoing research in regards to retinitis pigmentosa. ClinicalTrials.gov is an up-to-date site that identifies such research projects. To look for research on retinitis pigmentosa, search the term "retinitis pigmentosa" in the search box.
Another good source of information in regards to ongoing research on retinitis pigmentosa is through support groups for the condition. The Foundation Fighting Blindness maintains a page on their website devoted to information about retinitis pigmentosa. Research to Prevent Blindness also maintains a web page devoted to research on retinitis pigmentosa.
If you are interested in being a part of a clinical research trial, it is important that you talk to your doctor and family or friends to determine if it's right for you. For more information about individual studies, your doctor can contact the research team listed on a particular study's page.
How do I give money to help research in retinitis pigmentosa?
There are several options for donating to research on retinitis pigmentosa, as well as to help advocate for affected individuals. Below is a list of several non-profit organizations who are dedicated to these causes:
- Foundation Fighting Blindness
- Retinitis Pigmentosa International
- The Juliette RP Vision Foundation
- American Foundation for the Blind
- Research to Prevent Blindness
Aside from donating to non-profit groups, it is also possible to donate money to medical centers of excellence that treat retinitis pigmentosa. Additionally, donating to large national charities that serve to advocate and fund research on a number of genetic conditions, including but not limited to retinitis pigmentosa, can be of great assistance. To donate money to the National Organization for Rare Diseases, please visit their donation website.