Primary Distal Renal Tubular Acidosis

Organizations

Are there good support groups for primary distal renal tubular acidosis?

At this time, there is not a formal international or United States based support and advocacy group for primary distal renal tubular acidosis (primary dRTA). However, there are several Facebook pages focused on Primary dRTA such as the

ATP6V1B1 Renal Tubular Acidosis Kids With Hearing Loss Page, Renal Tubular Acidosis Page, and Parents of Children with Renal Tubular Acidosis

In addition, there are other support groups focused on specific symptoms of primary dRTA such as hearing loss and kidney (renal) disease. Examples of those include:

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