Pompe disease

Living with

What are some things that can help people with Pompe disease increase their ability to get around?

Most people with Pompe disease have muscle weakness that leads to them having problems getting around. The muscles affected include those in the legs and hips that allow people to walk, stand up straight, and keep their balance. Some of the ways people can manage their weakness and improve mobility include:

  • Physical therapy to improve muscle strength and flexibility
  • Occupational therapy to learn new ways to move and adapt to the body
  • Using medical equipment like wheelchairs to move around
  • Surgery is sometimes needed to fix bone problems like scoliosis (curvature of the spine) or contractures (limitations in joint movements)

Pompe Info on http://www.pompe.com

Kishnani PS, Steiner RD, Bali D et al. Pompe disease diagnosis and management guideline. Genet Med 2006 8:267-88.

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