Pompe disease

There are several support groups that support individuals with Pompe disease and raise money for research into better treatments. One organization is called the Acid Maltase Deficiency Association (AMDA). Another is the Muscular Dystrophy Association (MDA) which support people with many different muscle diseases, including Pompe disease. The Genetic Alliance is an umbrella organization which has information about support groups for many different organizations, including Pompe Disease. You can look up information about other groups at the Genetic Alliance website.