Are there good support groups for Peutz-Jeghers syndrome?
A few support groups for Peutz-Jeghers syndrome can be found such as:
- Genetic and Rare Disease Information Center
- NORD, Peutz Jeghers Syndrome, Rare Disease Database, updated 2018, https://rarediseases.org/rare-diseases/peutz-jeghers-syndrome/ Accessed 28NOV19.
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Where do I find other people with Peutz-Jeghers syndrome?
There are several ways to connect with other people with Peutz-Jeghers syndrome, including online community forums such as Smart Patients. Your genetic counselor or medical genetics specialist can also help connect you to other families with Peutz-Jeghers syndrome.
- NSGC, About Genetic Counselors. http://www.aboutgeneticcounselors.com/ Accessed 28NOV19.