Peutz-Jeghers syndrome


Are there good support groups for Peutz-Jeghers syndrome?

A few support groups for Peutz-Jeghers syndrome can be found such as:

Hereditary Colon Cancer Foundation


Peutz-Jeghers Syndrome Online Support Group

Additional support may be found at the Genetic and Rare Disease Information Center and National Organization for Rare Diseases both have links to support groups for Peutz-Jeghers syndrome.

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Where do I find other people with Peutz-Jeghers syndrome?

Where do I find other people with Peutz-Jeghers syndrome?

There are several ways to connect with other people with Peutz-Jeghers syndrome, including online community forums such as Smart Patients. Your genetic counselor or medical genetics specialist can also help connect you to other families with Peutz-Jeghers syndrome.


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