Are there good support groups for osteogenesis imperfecta?
There are several support groups or organizations for osteogenesis imperfecta (OI) that provide support, information, advice, guidance, referrals to physicians and medical centers, and up-to-date information on research and treatments. Support groups for OI include: the Osteogenesis Imperfecta Foundation, Children's Brittle Bone Foundation, and the Brittle Bone Society.
SOURCE: Emory University - Department of Human Genetics in collaboration with ThinkGenetic • https://www.thinkgenetic.com/diseases/osteogenesis-imperfecta/organizations/27321 • DATE UPDATED: 2017-04-11
Steiner RD, Adsit J, Basel D. COL1A1/2-Related Osteogenesis Imperfecta. GeneReviews website. Accessed April 6, 2017. https://www.ncbi.nlm.nih.gov/books/NBK1295/
Osteogenesis Imperfecta. The National Organization for Rare Disorders website. Accessed April 6, 2017. https://rarediseases.org/rare-diseases/osteogenesis-imperfecta/