How do I find a center of excellence in osteogenesis imperfecta?
The best way to obtain the most accurate, current, clear, and comprehensive information is to be seen at an osteogenesis imperfecta (OI) Clinic. These clinics are centers that specialize in the treatment of patients with osteogenesis imperfecta. At most centers, you will see a medical team experienced in treating OI and able to answer your questions, discuss testing, and develop a comprehensive evaluation and treatment plan for you. A Clinic will work with your current doctors to organize the treatment, tests, and specialists you need. The Osteogenesis Imperfecta Foundation has a listing of OI Clinics.
SOURCE: Emory University - Department of Human Genetics in collaboration with ThinkGenetic • https://www.thinkgenetic.com/diseases/osteogenesis-imperfecta/healthcare-doctors/27318 • DATE UPDATED: 2017-04-10
2017 OI Clinic Directory. The Osteogenesis Imperfecta Foundation website. http://www.oif.org/site/DocServer/2017_Clinic_Directory_Doc.pdf?docID=18704
Steiner RD, Adsit J, Basel D. COL1A1/2-Related Osteogenesis Imperfecta. GeneReviews website. Accessed April 6, 2017. https://www.ncbi.nlm.nih.gov/books/NBK1295/