Mucopolysaccharidosis Type VI

Organizations

Where do I find other people with Mucopolysaccharidosis Type VI?

You can find other people with mucopolysaccharidosis type VI (MPS VI) online through different support groups like the United States's National MPS Society, the Canadian Isaac Foundation, or a Facebook group entitled "MPS (Mucopolysaccharidoses)" at https://www.facebook.com/groups/166858949991311/. If you are interested in meeting other people with MPS VI in person, this may be difficult since it is a rare genetic condition. However, if you see doctors that are familiar with mucopolysaccharidoses or other lysosomal storage diseases, they may know other people with MPS VI in your area that they can put you in contact with.

https://www.theisaacfoundation.com/

https://www.facebook.com/groups/166858949991311/

http://mpssociety.org/

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