Mucopolysaccharidosis Type VI
Organizations
Are there good support groups for Mucopolysaccharidosis Type VI?
There are several support groups available for people with Mucopolysaccharidosis Type VI online. The National MPS Society is a community that has several support resources available. There is also a Facebook Group that serves as a support community for adults with various mucopolysaccharidoses and parents of children with these genetic conditions. This Facebook Group is entitled "MPS (Mucopolysaccharidoses)" and can be found at https://www.facebook.com/groups/166858949991311/.
https://www.facebook.com/groups/166858949991311/
http://mpssociety.org/