Mucopolysaccharidosis Type VI

Living with

Why do some people with Mucopolysaccharidosis Type VI have very cold hands and feet?

Some people with Mucopolysaccharidosis Type VI may have problems breathing or problems with their heart that stops their blood from circulating to the hands and feet correctly. If this happens, a person can have cold hands and feet that are not warmed as much as other parts of the body. Some people use gloves and socks to warm up their hands and feet, but other people may need to see a doctor to talk about what is causing this and how to treat it. If a person with Mucopolysaccharidosis Type VI's hands or feet turn blue one time or on a regular basis, this is something that needs to be talked about with a doctor and could mean there is a more serious problem with the heart or lungs.

http://mpssociety.org/wp-content/uploads/2011/07/booklet_MPS_VI_v5.pdf

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