Mucopolysaccharidosis Type VI

Clinical Research/Studies

Is there clinical research going on for Mucopolysaccharidosis Type VI?

As of December 23, 2015, there is clinical research studying the usefulness of certain drugs in people with Mucopolysaccharidosis Type VI (MPS VI), the health and development of individuals with MPS VI, and the usefulness of other treatments in people with MPS VI. You can find clinical research opportunities in MPS VI online by going to www.clinicaltrials.gov and searching for "Mucopolysaccharidosis Type VI", "Mucopolysaccharidosis VI", or "Maroteaux-Lamy Syndrome" in the search box on the home page. This will show you ongoing clinical trials and those that are currently recruiting people to participate.

References
  • https://clinicaltrials.gov/ct2/results?cond=%22Mucopolysaccharidosis+Type+VI%22
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How do I find clinical research in Mucopolysaccharidosis Type VI?

How do I give money to help research in Mucopolysaccharidosis Type VI?

How do I find clinical research in Mucopolysaccharidosis Type VI?

You can find clinical research opportunities in Mucopolysaccharidisosis Type VI online by going to www.clinicaltrials.gov and searching for "Mucopolysaccharidosis Type VI", "Mucopolysaccharidosis VI", or "Maroteaux-Lamy Syndrome" in the search box on the home page. This will show you ongoing clinical trials and those that are currently recruiting people to participate.

References
  • www.clinicaltrials.gov
How do I give money to help research in Mucopolysaccharidosis Type VI?

Donations that go towards research for cures for all types of mucopolysaccharidosis, including type VI, can be submitted online or by mail to the National MPS Society. You can also donate money to research in a particular group of conditions that includes mucopolysaccharidosis through the National Organization for Rare Disorders by going to https://salsa3.salsalabs.com/o/51076/donate_page/research-program and selecting "Lysosomal Storage Diseases" from the drop-down menu. You can also donate money to The Isaac Foundation, which is a Canadian organization that uses funds to help research cures for mucopolysaccharidoses, including type VI, by going to https://www.theisaacfoundation.com/#section-donate-now.

References
  • http://mpssociety.org/donate/
  • https://salsa3.salsalabs.com/o/51076/donate_page/research-program
  • https://www.theisaacfoundation.com/#section-donate-now

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