Alpha-mannosidosis
Organizations
Are there good support groups for Alpha-Mannosidosis?
There are several support groups available for people with Alpha-mannosidosis online. The National MPS Society of the United Kingdom (http://www.mpssociety.org.uk/support/) provides support for people and families affected by Mucopolysaccharidoses and other lysosomal storage disorders like Alpha-mannosidosis. ISMRD (http://www.ismrd.org/), the International Advocate for Glycoprotein Storage Diseases, is the international support resources for Alpha-mannosidosis.
SOURCE: Emory University - Department of Human Genetics in collaboration with ThinkGenetic • https://www.thinkgenetic.com/diseases/mannosidosis-alpha-b-lysosomal/organizations/9087 • DATE UPDATED: 2019-05-30