Alpha-mannosidosis

Organizations

Are there good support groups for Alpha-Mannosidosis?

There are several support groups available for people with Alpha-mannosidosis online. The National MPS Society of the United Kingdom (http://www.mpssociety.org.uk/support/) provides support for people and families affected by Mucopolysaccharidoses and other lysosomal storage disorders like Alpha-mannosidosis. ISMRD (http://www.ismrd.org/), the International Advocate for Glycoprotein Storage Diseases, is the international support resources for Alpha-mannosidosis.

SOURCE: Emory University - Department of Human Genetics in collaboration with ThinkGenetic • https://www.thinkgenetic.com/diseases/mannosidosis-alpha-b-lysosomal/organizations/9087 • DATE UPDATED: 2019-05-30

References

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