Are there good support groups for Alpha-Mannosidosis?

There are several support groups available for people with Alpha-mannosidosis online. The National MPS Society of the United Kingdom ( provides support for people and families affected by Mucopolysaccharidoses and other lysosomal storage disorders like Alpha-mannosidosis. ISMRD (, the International Advocate for Glycoprotein Storage Diseases, is the international support resources for Alpha-mannosidosis.

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