How do I find a center of excellence in Alpha-mannosidosis?

There are not centers of excellence specifically for Alpha-mannosidosis, but there are several centers of excellence in the United States and other countries for lysosomal storage disorders, including Alpha-mannosidosis. To find a doctor or center that specializes in metabolic genetic conditions or lysosomal storage disorders like Alpha-mannosidosis in the United States, you can access the list of centers compiled by the National Mucopolysaccharidosis Society by visiting and clicking the "MPS Genetic Centers" Link to download the corresponding Excel file. Another option to access this file is to directly go to Even though this list is on a website focused on Mucopolysaccharidoses, these doctors often specialize in many different types of lysosomal storage diseases, including Alpha-mannosidosis.

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