Is there clinical research going on for Alpha-mannosidosis?
As of May 2019 there is clinical research studying the usefulness of certain drugs in people with Alpha-mannosidosis, as well as long term information about the life of people with Alpha-mannosidosis. For up-to-date information on clinical trials visit clinicalgrials.gov and search for Alpha-mannosidosis.
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How do I find clinical research in Alpha-mannosidosis?
You can find clinical research opportunities in Alpha-mannosidosis online by going to www.clinicaltrials.gov and searching for "Alpha-mannosidosis" in the search box on the home page. This will show you ongoing clinical trials and those that are currently recruiting people to participate.
How do I give money to help research in Alpha-mannosidosis?
Donations that go towards research for cures for Mucopolysaccharidoses and other lysosomal storage diseases, including Alpha-mannosidosis can be submitted online or by mail to the Mucopolysaccharidosis (MPS) Society of the United Kingdom (http://www.mpssociety.org.uk/index.php/fund/support-us/). You can also donate money to research in a particular group of conditions that includes Mucopolysaccharidosis through the National Organization for Rare Disorders by going to https://salsa3.salsalabs.com/o/51076/donate_page/research-program and selecting "Lysosomal Storage Diseases" from the drop-down menu.