Li-fraumeni syndrome

Healthcare/Doctors

How do I find someone who specializes in Li-Fraumeni syndrome?

A genetic counselor can help to further explain Li-Fraumeni syndrome (LFS) and other hereditary cancer conditions and answer any questions. To find a local genetic counselor who specializes in hereditary cancer syndromes visit National Society of Genetic Counselors (NSGC) website.

You may also find medical professionals knowledgeable about LFS at your local or regional cancer center. Some cancer centers may have hereditary cancer risk programs available.

The Li-Fraumeni Association website also has helpful information about how to find treatment facilities.

References
  • LFSA Association. (n.d.). Treatment Facilities (search). Retrieved from http://www.lfsassociation.org/medical-resources/treatment-facilities/.
  • NSGC. (n.d.). FIND A GENETIC COUNSELOR. Retrieved from https://www.findageneticcounselor.com/.
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What specialists do I need to see for Li-Fraumeni syndrome?

What specialists do I need to see for Li-Fraumeni syndrome?

People with Li-Fraumeni syndrome should be managed by a multidisciplinary team with expertise in caring for people with this conditon. Specialists may include oncologists, dermatologists, surgeons, and other providers. Some cancer centers may have specific programs for individuals with hereditary cancer risk.

People with Li-Fraumeni should see a genetic counselor. A genetic counselor can help to further explain Li-Fraumeni syndrome and answer any questions. A genetic counselor can also help to make appropriate referrals to specialists. To find a local genetic counselor that specializes in hereditary cancer syndromes visit the National Society of Genetic Counselors (NSGC) website.

References
  • Schneider, K. (2019, November 21). Li-Fraumeni Syndrome. Retrieved from http://www.ncbi.nlm.nih.gov/books/NBK1311/.
  • NSGC. (n.d.). FIND A GENETIC COUNSELOR. Retrieved from https://www.findageneticcounselor.com/.

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