Are there good support groups for Klippel-Feil syndrome?
The main active support group for Klippel-Feil syndrome (KFS) in the United States and around the world is "Klippel-Feil Freedom" https://www.facebook.com/KlippelFeilSyndromeFreedom[/link. Support groups, such as this, are often the best way to find others living with KFS and a great source for up-to-date and accurate information on clinical trials, resources, and treatment. It may also be helpful to work with symptom specific support groups such as those for chronic pain such as the
SOURCE: Emory University - Department of Human Genetics in collaboration with ThinkGenetic • https://www.thinkgenetic.com/diseases/klippel-feil-syndrome-109938/organizations/66943 • DATE UPDATED: 2019-07-26
"Klippel-Feil Freedom" https://www.facebook.com/KlippelFeilSyndromeFreedom