Are there good support groups for Klinefelter syndrome?
There are several support groups options for individuals with Klinefelter syndrome and their loved ones. Listed below are a few of the ones available.
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Where do I find other families with a child with Klinefelter syndrome?
Other individuals or families with Klinefelter syndrome can most often be found through online support groups (listed below). In-person support groups may also and your genetic counselor may be able to recommend or locate one in your area.
- American Association for Klinefelter Syndrome Information and Support (http://www.aaksis.org)
- The Focus Foundation (http://www.thefocusfoundation.org)
- Association for X and Y Chromosome Variations (http://www.genetic.org)
- Klinefelter Syndrome Information and Support (http://www.klinefeltersyndrome.org)
Where can I find helpful resources for my patients with Klinefelter syndrome?
The Association for X and Y Chromosome Variations offers helpful information for healthcare professionals and materials for them to provide to patients. The American Association for Klinefelter Syndrome Information and Support also offers brochures targeted to healthcare providers as well as families and patients.