Are there good support groups for Kabuki syndrome?
There are several support groups for families affected by Kabuki syndrome. Some of them are in the United States and some are in other countries. They include:
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Where do I find other people with Kabuki syndrome?
Support organizations and Facebook pages can help connect you with other people with Kabuki syndrome. These organizations can also tell you about conferences and meetings for Kabuki syndrome where you can meet other individuals and families with Kabuki syndrome.
How do I start a support group for Kabuki syndrome?
To start a local support group, it is a good idea to contact the national Kabuki syndrome organization to learn more about how to set up a local group. Facebook is also a helpful tool for finding other people in your area that would like to help with this process. You can contact the Kabuki syndrome network at http://kabukisyndrome.com/contact.