Are there good support groups for Hirschsprung disease?
There are several good online support groups such as:
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Where do I find other people with Hirschsprung disease?
To find other patient's and families with Hirschsprung disease start by asking your medical team for local resources. You may also want to join a support group, such as this one through Hirschsprung's & Motility Disorders Support Network (HMDSN):http://hirschsprungs.info/Index.php.