Hirschsprung disease

Living with

What should I expect after a colostomy or ostomy for Hirschsprung Disease?

After surgery for Hirschsprung disease gas and stool are no longer trapped in the colon, and there is usually a sense of relief. The colon, or large intestine, is the last part of the digestive system and transports digested food and liquid from the small intestine to the rectum. For older children who have an ostomy, a procedure that involves removing part of the colon and reconnecting the colon to the abdomen, the opening in their abdomen may be embarrassing and make them feel different from their friends. They will also have to learn how to care for the opening and manage the pouch it empties into. There are special nurses called ostomy nurses that can help. Speak with your child's physician about helping your child to manage their ostomy or for a referral to an ostomy nurse in your area.

"Hirschsprung Disease" National Institute of Diabetes and Digestive and Kidney Diseases. Jul. 2013. http://www.niddk.nih.gov/health-information/health-topics/digestive-diseases/hirschsprung-disease/Pages/ez.aspx

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