Gaucher disease
Organizations
Is the NGF the only Gaucher support group?
In the United States, The National Gaucher Foundation Inc., a ThinkGenetic Advocacy Partner, and the Gaucher Community Alliance offer several different ways to connect with others living with Gaucher disease. There are programs like the Gaucher mentor program, an online Gaucher chat support, and Gaucher patient registry that can help individuals with Gaucher disease to connect with one another.
Visit these groups to find resources nearest to you.
Many countries around the globe provide a patient organization to help meet your needs. In the browser, type in Gaucher advocacy to find a program.
References
- National Gaucher Foundation Inc. [Internet] [updated 2016]. Available from: http://www.gaucherdisease.org/
- Gaucher Community Alliance https://www.gauchercommunity.org/
More Organizations Content
Where is the best info on Gaucher?
Where is the best info on Gaucher?
National Gaucher Foundation (NGF)
5410 Edson Lane
Suite 220
Rockville, Maryland 20852
Phone: 800-504-3189 (toll-free)
Email: ngf@gaucherdisease.org
Gaucher Community Alliance
Phone: 504-782-2057 |
Email: info@gauchercommunity.org
https://www.gauchercommunity.org/
The Gauchers Association Ltd
Evesham House Business Centre
48/52 Silver Street
Dursley Gloucestershire GL11 4ND
United Kingdom
Phone: +44 1453 549231
Email: office@gauchers.org.uk
Center for Jewish Genetic Disorders
Ben Gurion Way
30 South Wells Street
Chicago IL 60606
Phone: 312-357-4718
Email: jewishgeneticsctr@juf.org
As Gaucher disease is the most common Jewish genetic disorder, information about Gaucher disease can also be found at Jewish organizations.
References
- National Gaucher Foundation www.gaucherdisease.org
- Gaucher Community Alliance https://www.gauchercommunity.org/
