What if I have any unusual symptoms after the ERT infusion for Fabry disease?
Some people with Fabry disease feel bloated, tired, have increased leg pain, headache, increased tiredness, chest pain, racing heart, chills, nausea, fever, or itching after their infusion. If you are having these or other health issues after your infusion, please let your health care team and infusion nurse know right away. It may be that taking a medication like Benadryl or a steroid may be needed before the next infusion. Your healthcare team will let you know if you will be taking new medications before your next infusion, have blood collected for antibody testing, and if the infusion will be slowed down next time.
Enzyme Replacement Therapy for Fabry Disease at Emory Lysosomal Storage Disease Center. (2015, July 9). Retrieved from https://genetics.emory.edu/documents/resources/ERT-Fabry.pdf.
Fabry disease revisited: Management and treatment recommendations for adult patients. Ortiz A, Germain DP, Desnick RJ, Politei J, Mauer M, Burlina A, Eng C, Hopkin RJ, Laney D, Linhart A, Waldek S, Wallace E, Weidemann F, Wilcox WR. Mol Genet Metab. 2018 Apr;123(4):416-427. doi: 10.1016/j.ymgme.2018.02.014. Epub 2018 Feb 28. Review. https://www.sciencedirect.com/science/article/pii/S1096719217307680?via%3Dihub Retrieved 12DEC19.