Do I need to do anything special for my first Fabry ERT infusion?
It is important to drink plenty of water the night before and the morning of your infusion. Being well hydrated makes starting the IV for the infusion line much easier, so it's important to be hydrated before all infusions. Note: if you are on dialysis or have another reason for careful fluid intake monitoring, continue to follow your doctor's instructions. The morning of the infusion, eat breakfast as normal and prepare for a long day. Please talk to your Fabry doctor or genetic counselor for more information about what to expect with ERT treatment and how to prepare for your first infusion.
Enzyme Replacement Therapy for Fabry Disease at Emory Lysosomal Storage Disease Center. (2015, July 9). Retrieved from https://genetics.emory.edu/documents/resources/ERT-Fabry.pdf.
Mehta, A. (2017, January 5). Fabry Disease. Retrieved November 22, 2019, from http://www.ncbi.nlm.nih.gov/books/NBK1292/.
Sanofi Genzyme - Fabrazyme® (agalsidase beta). (2019, May 1). Retrieved from https://www.fabrazyme.com/healthcare/About-Fabrazyme/Clinical-Data.aspx.