Fabry disease

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What are the advantages of home infusion for Fabry disease?

The following content is sponsored by Diplomat.

For people who have Fabry disease, home infusions of enzyme replacement therapy (ERT) can be a safe and practical way to reduce the burden of treatment. The advantages of home infusion may include:

  • Reduction of work and school absences with flexible scheduling
  • Personalized care with more one-on-one nurse time
  • Increased ease in staying on an infusion schedule with expanded scheduling time options
  • Increased quality of life related to decreased disruption of daily activities
  • Decreased therapy delivery costs as home infusions are often less expensive than outpatient hospital infusions

Having said this, home infusion therapy may not be right for everyone. Some people don't want to see infusion supplies in their home and refrigerator - it's a reminder that they have a chronic health condition. Others enjoy the "me time" at the infusion clinic, where they have time to read or catch up with friends they've met there.

Individuals living with Fabry disease who have questions about the differences between home infusions and infusions in a clinic or hospital should always feel free to ask their healthcare provider about the advantages and disadvantages of both options. In addition, some specialty infusion pharmacies, such as Diplomat Specialty Infusion Group, have disease-specific advocacy teams who will walk you through the home infusion process step-by-step and answer your questions along the way.

Concolino, D. et al. "Home Infusion Program with Enzyme Replacement Therapy for Fabry Disease: The Experience of a Large Italian Collaborative Group." Molecular Genetics and Metabolism Reports 12 (2017): 85-91

Milligan A, Hughes D, Goodwin S, Richfield L, Mehta A. Intravenous enzyme replacement therapy: better in home or hospital? Br J Nurs. 2006 Mar 23-Apr 12;15(6):330-3. PMID: 16628169 https://www.ncbi.nlm.nih.gov/pubmed/16628169?report=abstract

Beck M, Gaedeke J, Martus P, Karabul N, Rolfs A. [Home-based infusion therapy--a feasible approach for chronically ill patients? A new path to provide superior patient care exemplified for Fabry's disease]. Dtsch Med Wochenschr. 2013 Nov;138(46):2345-50. doi: 10.1055/s-0033-1349624. Epub 2013 Nov 5. German. PMID: 24193859 https://www.ncbi.nlm.nih.gov/pubmed/24193859

Smid BE, Hoogendijk SL, Wijburg FA, Hollak CE, Linthorst GE. A revised home treatment algorithm for Fabry disease: influence of antibody formation. Mol Genet Metab. 2013 Feb;108(2):132-7. doi: 10.1016/j.ymgme.2012.12.005. Epub 2012 Dec 28. PMID: 23332169 https://www.ncbi.nlm.nih.gov/pubmed/23332169

Kisinovsky I, Cáceres G, Coronel C, Reisin R. Home infusion program for Fabry disease: experience with agalsidase alfa in Argentina. Medicina (B Aires). 2013;73(1):31-4.PMID: 23335703 http://www.medicinabuenosaires.com/PMID/23335703.pdf

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