Are genetic test results for Fabry disease private?
Some people may feel concerned about maintaining the privacy of their genetic information. Medical doctors aren't allowed to tell anyone that an individual has had a genetic test or its results without consent; however, health insurance company can request your medical records after permission is given. Individuals with privacy concerns about their genetic information should discuss these with their genetic counselor or Fabry doctor.
Emory University Fact Sheet, updated 8/20/2015
Mehta, A. (2017, January 5). Fabry Disease. Retrieved November 22, 2019, from http://www.ncbi.nlm.nih.gov/books/NBK1292/.