Where do I learn more about clinical trials for Fabry disease?
The easiest way to learn more about studies and clinical trials in Fabry disease is to talk to a genetic counselor, a doctor that specializes in Fabry disease, or medical geneticist that is familiar with Fabry disease. However, studies focusing on treatments and cures are also posted at clinicaltrials.gov where you can search for "Fabry disease." It may help to avoid limiting your search to your state or country, as many studies will pay for your travel if you are eligible to join.
Another great resource for information on studies are the Fabry support groups. The support websites that may be of help are: The National Fabry Disease Foundation, Fabry Support and Information Group or FSIG
Individuals interesting in learning more about what it means to participate in a clinical trial may wish to visit webpages such as the Emory Genetic Clinical Trials Center Clinical Trials Resources Page to learn more about being a part of these studies.
Antidote also offers a handy tool to find clinical trials.
SOURCE: Emory University - Department of Human Genetics in collaboration with ThinkGenetic • https://www.thinkgenetic.com/diseases/fabry-disease/clinical-research/575 • DATE UPDATED: 2019-12-12
National Fabry Disease Foundation. (n.d.). Retrieved from http://www.fabrydisease.org.
Fabry Support & Information Group. (n.d.). Retrieved November 22, 2019, from http://www.fabry.org.
Discover Fabry. (n.d.). Retrieved November 22, 2019, from https://www.discoverfabry.com/.
Fabry Disease. (n.d.). Retrieved November 22, 2019, from http://rarediseases.org/rare-diseases/fabry-disease/.
U.S. National Library of Medicine - clinicaltrials.gov. (n.d.). Retrieved from https://clinicaltrials.gov/.
Mehta, A. (2017, January 5). Fabry Disease. Retrieved November 22, 2019, from http://www.ncbi.nlm.nih.gov/books/NBK1292/.