Ehlers-Danlos syndrome, Vascular type (type IV)

Healthcare/Doctors

Where can I find doctors with experience treating vascular Ehlers-Danlos syndrome?

The Ehlers-Danlos Society provides a medical professionals directory on their website of physicians around the world who have experience treating individuals living with vascular Ehlers-Danlos syndrome. The information can be accessed at this link: www.ehlers-danlos.com/medical-professionals-directory/

References
  • https://www.ehlers-danlos.com/medical-professionals-directory/
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What specialist doctors should people living with vascular Ehlers-Danlos syndrome see?

What specialist doctors should people living with vascular Ehlers-Danlos syndrome see?

Due to the risk for vascular rupture and aneurysms, people living with vascular Ehlers-Danlos syndrome (EDS) should see a heart doctor (cardiologist). There is risk for ruptures of the intestines so it is important for to see a gastroenterologist. Women who have vascular EDS and want to get pregnant should see a high risk OB as well as a perinatologist or maternal fetal medicine specialist. Having a regular neurologist can also be important. The Ehlers-Danlos Society provides a medical professionals directory on their website of physicians around the world who have experience treating individuals living with vascular Ehlers-Danlos syndrome. The information can be accessed at this link: www.ehlers-danlos.com/medical-professionals-directory/

References

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