Ehlers-Danlos syndrome, Vascular type (type IV)
Healthcare/Doctors
Where can I find doctors with experience treating vascular Ehlers-Danlos syndrome?
The Ehlers-Danlos Society provides a medical professionals directory on their website of physicians around the world who have experience treating individuals living with vascular Ehlers-Danlos syndrome. The information can be accessed at this link: www.ehlers-danlos.com/medical-professionals-directory/
References
- https://www.ehlers-danlos.com/medical-professionals-directory/
More Healthcare/Doctors Content
What specialist doctors should people living with vascular Ehlers-Danlos syndrome see?
What specialist doctors should people living with vascular Ehlers-Danlos syndrome see?
Due to the risk for vascular rupture and aneurysms, people living with vascular Ehlers-Danlos syndrome (EDS) should see a heart doctor (cardiologist). There is risk for ruptures of the intestines so it is important for to see a gastroenterologist. Women who have vascular EDS and want to get pregnant should see a high risk OB as well as a perinatologist or maternal fetal medicine specialist. Having a regular neurologist can also be important. The Ehlers-Danlos Society provides a medical professionals directory on their website of physicians around the world who have experience treating individuals living with vascular Ehlers-Danlos syndrome. The information can be accessed at this link: www.ehlers-danlos.com/medical-professionals-directory/
References
- https://www.ehlers-danlos.com/medical-professionals-directory
- Genetic and Rare Disease Information Center, Vascular Ehlers-Danlos syndrome. Updated 21APR2017. https://rarediseases.info.nih.gov/diseases/2082/vascular-ehlers-danlos-syndrome Accessed 18JAN2020.