Ehlers-Danlos syndrome, Classic type (type I)

People with Ehlers-Danlos syndrome (EDS) require periodic checkups or exams to monitor their health. They will be checked to see how well treatment is working, whether the disease has progressed or gotten better, or they will be checked for the possible development of new symptoms.

Rare diseases that affect multiple organ systems can benefit from a multidisciplinary approach. This approach involves healthcare professionals with specialized skills and expertise. They work together to make treatment recommendations and to provide quality care of individuals and families. Depending upon the specific symptoms in an individual multidisciplinary team may require a specialist for managing fragile and damage skin (dermatologist); specialists who treat and monitor connective tissue disorders (rheumatologists); a specialist who can monitor and treatment problems of the muscles, joints, and skeleton (orthopedist); a heart and blood vessel specialist (cardiologist) who will monitor and treat the cardiovascular system; an eye doctor (ophthalmologist) who can periodically check for cataracts; a psychiatrist to monitor and treat emotional or behavior problems; a genetic counselor who can help people understand the disease and the implications for the person and other family members, a metabolic disease specialist, a specialist in digestive disorders (gastroenterologist), physiotherapists, occupational therapists, and nutritionists.