Cystic fibrosis

Organizations

Are there good support groups for cystic fibrosis?

There are many good support groups for cystic fibrosis. One of the easiest ways to find a support group in your area is to go to the Cystic Fibrosis Foundation's website and click on "Get Support". This will lead you to a link where you can find a local chapter of the foundation. You can also get support from online groups as well, like Cystic Fibrosis Foundation, Cysticfibrosis.com, CF Living, Cystic Fibrosis Research Inc., Cystic Fibrosis Reaching Out Foundation, and Cystic Fibrosis Trust.

References
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Where do I find other people with cystic fibrosis?

How do I give money to help research in cystic fibrosis?

How do I start a support group for cystic fibrosis?

Where do I find other people with cystic fibrosis?

One of the best ways to meet other individuals with cystic fibrosis is through online support groups, including Facebook groups. Some support groups do meet in person, but that increases the likelihood of spreading infections amongst those with CF. The Cystic Fibrosis Foundation recommends that individuals with CF remain six feet from one another at all times. As such, many people prefer to connect with others through online portals. You can meet people through the following online groups, Cystic Fibrosis Foundation, Cysticfibrosis.com, CF Living, Cystic Fibrosis Research Inc., Cystic Fibrosis Reaching Out Foundation, and Cystic Fibrosis Trust. Multiple facebook groups also exist.

References
  • Cystic Fibrosis Foundation. "Infection Prevention and Control Guideline for Cystic Fibrosis: 2013 Update" Infection Control and Hospital Epidemiology. August 2014, 35 (S1):S1-S67
How do I give money to help research in cystic fibrosis?

There are multiple ways to help this community through financial contribution. You can donate to a support group like the Cystic Fibrosis Foundation, Cysticfibrosis.com, CF Living, Cystic fibrosis Research Inc., Cystic Fibrosis Reaching Out Foundation, and Cystic Fibrosis Trust. Support groups will use their funds differently. Some will help to raise awareness, assist people with cystic fibrosis, or donate to medical research.

References
How do I start a support group for cystic fibrosis?

There are many support groups for cystic fibrosis. If you are interested in starting a group, it would be easiest to contact existing support group leaders and find out about opportunities in your community.

References

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