Cowden syndrome

Healthcare/Doctors

How do I find someone who specializes in Cowden syndrome?

A genetic counselor can help to further explain Cowden syndrome and other hereditary cancer conditions and answer any questions you have. Genetic counselors in the United States can be found on the National Society of Genetic Counselors website. Genetic counselors in Canada can be found at the Canadian Association of Genetic Counselors website.

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What specialist doctors should I see with Cowden syndrome?

What specialist doctors should I see with Cowden syndrome?

People with Cowden syndrome should be managed by a multidisciplinary team with expertise in caring for people with this condition. Specialists may include oncologists, dermatologists, possibly surgeons, and other providers.

People with Cowden should see a genetic counselor. A genetic counselor can help to further explain Cowden syndrome and and answer any questions you have. A genetic counselor can also help to make any appropriate referrals to specialists. Genetic counselors in the United States can be found on the National Society of Genetic Counselors website. Genetic counselors in Canada can be found at the Canadian Association of Genetic Counselors website.

References
  • PTEN Hamartoma Tumor Syndrome. [Internet]. Gene Reviews [updated June 2, 2016]. Available from: https://www.ncbi.nlm.nih.gov/books/NBK1488/

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