Congenital disorder of glycosylation, type ib


How do I start a support group for congenital disorder of glycosylation type 1B?

Starting a support group is a great idea and a great help to families and individuals experiencing the same issues and symptoms of the condition. If you are interested in starting a support group of your own, a good place to start is by speaking to the support groups and organizations already founded. They likely can provide information about people near you that are interested in creating a support group.

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