Congenital disorder of glycosylation, type ib
Where can I find information on parent and caregiver resources for congenital disorder of glycosylation type 1B?
The Parent Technical Assistance Center Network provides a list of training and information centers. These centers provide information on early intervention (EI) services and other training for parents who are taking care of children with disabilities. This site provides information on centers in states across the United States. You can also speak with your child's geneticist and genetic counselor to learn about other local resources.