Congenital disorder of glycosylation, type ib
How do I find a center of excellence in congenital disorder of glycosylation type 1B?
To find a center of excellence in congenital disorder of glycosylation type 1B, you can go to the National Organization for Rare Disorders (NORD) website which provides information on centers of excellence for many rare conditions. Additionally, Orpha.net lists centres of expertise worldwide to find doctors and specialists who are experts in the condition. Another option is to search for a metabolic dietitian in your area who can direct you to a center of excellence.