Clouston syndrome

Living with

Where can I read patient stories about living with Clouston syndrome?

There are several sites that have patient stories about people living with genetic diseases:

ThinkGenetic - This site has a growing database of patient stories from patients around the world. You can read patient stories about Clouston syndrome here. If there is not a story, please consider adding your story.

Rare Diseases Europe offers stories from people with all types of rare genetic conditions. You can browse through the stories with pictures of the individuals who wrote them.

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What are some resources available for me to read about the psychological and social issues that are common when a family has a genetic condition?

What are some resources available for me to read about the psychological and social issues that are common when a family has a genetic condition?

There are many great resources out there for you to read about the psychological and social issues for families with a genetic disease. Here are a few.

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