Catecholaminergic polymorphic ventricular tachycardia

Organizations

Support groups are an excellent resource for families living with the same or a similar condition. It enables them to share their stories and experiences with those who can relate. Catecholaminergic polymorphic ventricular tachycardia has a few support groups available and they are listed below. For more information, please click the links provided.

  • Sudden Arrhythmia Death Syndromes - This organization aims to provide information, support, and awareness to the public about cardiac syndromes that can predispose them to sudden death. They have numerous programs which include patient and family support services, physician and health professional education, public awareness, and advocacy outreach and research. For more information on how to get involved, please click here.
  • Arrhythmia Alliance UK - This organization is based in the UK and offers support groups local to the England and London area. The website has useful information for patients who were recently diagnosed, living with the condition, and additional helpful resources (e.g. fact sheets and booklets).

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