Where can I get financial help for Canavan disease?
The medical costs of Canavan disease can be significant. Some families lack the resources necessary to provide for a chronically or terminally ill child. There are several organizations that provide financial assistance for Canavan families.
The Social Security Administration has a Compassionate Allowances Initiative. This program speeds up the processing of disability claims for people with specific medical conditions that cause severe disability. Canavan disease is included on this list. The Canavan Foundation and the Disability Benefits Center have information on compassionate Allowance for Canavan disease.
The National Organization for Rare Disorders has links to organizations that can provide financial assistance.
The National Human Genome Research Institute has extensive information on finding financial aid for medical treatment and services.
SOURCE: Emory University - Department of Human Genetics in collaboration with ThinkGenetic • https://www.thinkgenetic.com/diseases/canavan-disease/living-with/8759 • DATE UPDATED: 2016-06-17
Financial Assistance Information. National Human Genome Research Institute website. https://www.genome.gov/11008842/
Compassionate Allowance Conditions. Social Security website. https://www.ssa.gov/compassionateallowances/index.htm
Other Financial Assistance. The National Organization for Rare Disorders website. http://rarediseases.org/for-patients-and-families/help-access-medications/financial-assistance/