How do I find a center of excellence in Bethlem myopathy?
You can find a center of excellence in Bethlem myopathy in the United States through the Muscular Dystrophy Association (MDA). Through their website, you can find a MDA care center. MDA care centers are located throughout the United States and make up a multi-disciplinary care team of experts in muscular dystrophy.
In the United Kingdom, Muscular Dystrophy UK has information on their website for muscular dystrophy care clinics and supporting information on their website.
Muscular Dystrophy Canada is a good resource for those living in Canada for find centers of excellence in Bethlem myopathy.
Muscular Dystrophy Australia is a good resource for those living in Australia.
Cure CMD also lists clinics on their website comprised on doctors who specialize in muscular dystrophies. As of February 2019, Cure CMD lists clinics in the United States, Australia, Canada, Germany, Serbia, and Brazil.
SOURCE: Emory University - Department of Human Genetics in collaboration with ThinkGenetic • https://www.thinkgenetic.com/diseases/bethlem-myopathy-109941/healthcare-doctors/67042 • DATE UPDATED: 2019-02-22
Lampe AK, Flanigan KM, Bushby KM, et al. Collagen Type VI-Related Disorders. 2004 Jun 25 [Updated 2012 Aug 9]. In: Adam MP, Ardinger HH, Pagon RA, et al., editors. GeneReviews® [Internet]. Seattle (WA): University of Washington, Seattle; 1993-2019.Available from: https://www.ncbi.nlm.nih.gov/books/NBK1503/