Beckwith-wiedemann syndrome

Organizations

How do I give money to help research in Beckwith-Wiedemann syndrome?

There are a few different ways to donate money to help with research on Beckwith-Wiedemann syndrome. Donations are accepted by the Beckwith-Wiedemann Syndrome Fund at Alex's Lemonade Stand Foundation to further the research on Beckwith-Wiedemann syndrome.

Alternatively, The National Organization for Rare Disorders (NORD) is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them, including Beckwith-Wiedemann syndrome. Donations to NORD can be made here.

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Are there good support groups for Beckwith-Widemann syndrome?

Are there good support groups for Beckwith-Widemann syndrome?

There are many support groups for Beckwith-Widemann syndrome:

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