Autosomal dominant polycystic kidney disease

Healthcare/Doctors

How do I find a center of excellence in autosomal dominant polycystic kidney disease?

One of the best ways to find a treatment center or physician with experience in treating autosomal dominant polycystic kidney disease (ADPKD) is to contact a national support group. The PKD Foundation has 60 chapters and can help you locate physicians experienced in treating this disorder.

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What doctors do I need to see to manage and treat autosomal dominant polycystic kidney disease?

What doctors do I need to see to manage and treat autosomal dominant polycystic kidney disease?

Rare diseases that affect multiple organ systems like autosomal dominant polycystic kidney disease (ADPKD) can benefit from a multidisciplinary approach. This approach involves healthcare professionals with specialized skills and expertise. They work together to make treatment recommendations and to provide quality care of individuals and families. Depending upon the specific symptoms in an individual multidisciplinary team may require a general internist or pediatrician; a specialist in assessing and treating kidney disorders (nephrologist); a specialist in assessing and treating liver disease (hepatologist); a specialist in assessing and treating disorders of the brain and central nervous system (neurologist); a specialist in assessing and treating disorders of the blood vessels and heart (cardiologist); a specialist in assessing and treating disorders of the gastrointestinal tract (gastroenterologist); a genetic counselor who can help people understand the disease and the implications for the person and other family members; and a metabolic disease specialist.

Talk to your doctor about the best specialists in your area to follow an individual with ADPKD.

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