How do I find a center of excellence in argininosuccinic aciduria?
There are medical clinics and genetic clinics around the United States that can help people with metabolic disorders like argininosuccinic aciduria. The National Urea Cycle Disorders Foundation may be able to help you find a clinic or physician treating argininosuccinic aciduria near you. The Genetics and Rare Diseases Information Center has information on how to find a disease specialist. A medical geneticist can be found by asking your doctor for a referral or looking on the American College of Medical Geneticists website. If you are looking for a metabolic clinic for treatment in the United States, you can search for the clinic or clinics in your state.
A metabolic dietician can be found through the Genetic Metabolic Dieticians International webpage.
The National Urea Cycle Disorders Foundation website.
How to Find a Disease Specialist. The Genetics and Rare Diseases Information Center website. https://rarediseases.info.nih.gov/guides/pages/25/how-to-find-a-disease-specialist