Is there clinical research going on for Antley-Bixler syndrome?
Current clinical research can be found at https://clinicaltrials.gov/ . To learn more about the study of interest, such as eligibility criteria, you or your doctor can contact the study research staff provided on the website.
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How do I find clinical research in Antley-Bixler syndrome?
Clinical research can be found on the following sites:
- https://clinicaltrials.gov/ These are studies receiving US government funding. Some studies are supported by private industries.
- Clinical trials are conduct at the National Institute of Health Clinical Center in Bethesda, MD. One can contact the recruitment office at (800)411-1222, (866)411-1010, or firstname.lastname@example.org
- To learn about clinical trials sponsored by private sources, you can contact www.centerwatch.com
- For learn about clinical trials conducted in Europe, you can contact https://www.clinicaltrialsregister.eu/
If you are interested in being a part of a clinical research trial, it is important that you talk to your doctor and family or friends to determine if it's right for you. For more information about individual studies, you or your doctor can usually contact the research team listed on a particular studies page.
How do I give money to help research in Antley-Bixler syndrome?
There are multiple sites where you can donate to organizations doing research in skeletal abnormalities and human development:
- March of Dimes performs research on premature births, birth defects, and infant health. Visit https://www.marchofdimes.org to donate.
- FACE: The National Craniofacial Association advocates for and empowers individuals with craniofacial differences. Visit http://www.faces-cranio.org to donate.
- Children's Craniofacial Association addresses the medical, financial, psychosocial, emotional, and educational concerns relating to craniofacial conditions. Visit https://ccakids.org/ to donate.
- National Institute of Child Health and Human Development investigates human development throughout the entire life process, with a focus on understanding disabilities and important events that occur during pregnancy. Visit http://www.nichd.nih.gov to donate.
- Antley Bixler syndrome. (n.d.). Retrieved December 24, 2018, from https://rarediseases.info.nih.gov/diseases/5826/index