My child has just been diagnosed with Aniridia, what should I do?
The first, best thing to do is to get informed. The strongest advocate for a child reads information about aniridia on credible websites and using well-researched resources. Peer support is a must: many websites and support groups online can connect parents of children with aniridia in order to share their experiences and insights.
SOURCE: Emory University - Department of Human Genetics in collaboration with ThinkGenetic • https://www.thinkgenetic.com/diseases/aniridia/living-with/18093 • DATE UPDATED: 2016-06-24