How can I find a good doctor in my area for Aniridia?
Since aniridia is a rare condition, some doctors may not be very familiar with it. The Vision for Tomorrow Foundation suggests asking a doctor if they have experience with patients who have aniridia. This is important because some of the common treatments of the eye problems in aniridia may actually be contraindications in this case. The Vision for Tomorrow Foundation also suggests posting on the Facebook Page (United Families of Aniridia) one's specific needs and requests from other aniridia patients and parents.
SOURCE: Emory University - Department of Human Genetics in collaboration with ThinkGenetic • https://www.thinkgenetic.com/diseases/aniridia/healthcare-doctors/17306 • DATE UPDATED: 2016-06-24