Andermann syndrome

Organizations

Are there good support groups for Andermann Syndrome?

Popular media sites including Facebook can be great resources for connecting with other families who have children with Andermann Syndrome. There are also online support groups for families with children who have a missing or underdeveloped tissue connecting the left and right sides of the brain (corpus callosum) (https://www.facebook.com/groups/740816569313134/). The University of Maine has an online discussion group and provides information about those with a missing or underdeveloped corpus callosum that can be signed up for at https://umaine.edu/edhd/research/acc/networking-opportunities/. In addition, Muscular Dystrophy Canada has information and support for families with muscular dystrophy including Andermann syndrome.

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